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mitochondrial disease

8 hour cycles.

This is what our life has become – 8 hour cycles. I know I should have updated way before this – but now I am time crunched and can’t get into all the details like i’d like to – so here’s a few quick bullet points to hopefully help answer some of the questions you …

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One More Night.

It is hard to believe that last Thursday nite we checked into Hotel Milwaukee, with a whole different kiddo on our hands. I think I knew she was sick, but I don’t think I knew HOW sick she really was or would get. And honestly, I don’t think the gravity of this week will hit …

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The Triple Threat.

I am sure this actually happens a lot – but it was something that I really didn’t think was THAT possible….at least not in my child. But then again, this IS Kendall we are talking about. And by this I mean: She has a bacterial, a viral AND a fungal infection, all at the same …

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A long night.

It’s actually been just a long week, really. I figured i should get this all out before life gets too awful crazy and I leave everyone hanging. In a nutshell – Kendall is sick. She’s either really really sick (if it’s a line infection stemming from her port and all the crazy needle crap she’s …

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The Saga Continues.

Sometimes I struggle with updating the blog simply because I feel like we are just “that drama” that everyone is tired of hearing of because it just piles up until its at an unbelievable point. This week has definitely been one of those weeks. So remember how in my last post I talked about Kendall’s …

The Saga Continues. Read More »