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mitochondrial disease

Wednesday.

This is going to be a quickie – well, as quick as it gets around here. Seriously – this will be bare bones stuff that I will come back and fill in the gaps on tomorrow. Today started out by me coming over from RMH (the ronald mcdonald house where i come to sleep for …

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Elephants.

I really do like elephants. They are probably my favorite thing to go see at the zoo, if I had to pick a wild animal to ride, I’d definitely go for an elephant, and I absolutely adore watching them do tricks at the circus. And all of that is a good thing since we apparently …

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plans

They are good to have, but sometimes hard to make. Today at Kendall’s one year well child check up with Dr. Natalie, that was how it was. I love her. She continues to be one of the best people we could ever have hoped to have on Kendall’s team of doctors/care specialists. She looked at …

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a gift of hope

For the many many families affected by Mitochondrial Disease, HOPE is all they have to hold on to. A dear friend of mine  named Allison who I met on this path to a diagnosis for Kendall has a daughter affected by a strain of mito that was originally thought to be MELAS (which meant she …

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