random ramblings from me
I started to have one of “those” days today. Where i wished I had different clothes, a different body, a clean house, a maid to clean the house, that I got to go gallivanting off for a pedicure/vacation/shopping spree on a whim. All it took was a few facebook posts to get me both INTO… read more »
Ahhhh – what an amazing event the Friday nite “Hope For Kendall” benefit was! I am not sure that I can adequately put the whole thing into words. The overwhelming display of love and support for our family went so far beyond the confines of those four walls. It wasn’t just about having so many… read more »
For those of you who have not seen me plaster this all over facebook – or those of you who have but don’t understand it – I am hoping that this explanation can help move you to take action and sign our petition! Basically here’s what is going down: The state of IL has… read more »
Every once in a while, you are blessed to meet someone who has the biggest, most generous, most amazing heart and spirit. And when you meet that person, you feel kind of in awe of them, especially if you are lucky enough to be claimed as one of their friends. Because somehow, they make YOU… read more »
Well, as i had hoped, Kendall’s emergency warning symptoms of Sunday morning seem to once again just be the effects of a very wonky autonomic system! She spent most of yesterday laying on the couch quietly watching her Hot Dog, Eggo (Diego), and Berry Cort-cakes – temp still very slightly elevated, but no more bleeding.… read more »
You know that scene in the movie “dances with wolves” where Wind In His Hair negotiates a trade for Dances with Wolves and another tribe member and he says “Good. Trade.” – Ok maybe you don’t. But basically, this morning, I get the BAD end of a “trade” with Ben. One that I made while… read more »
Today’s appointments were MUCH quieter (because my awesome mom kept the other 3 banshees) than yesterdays, but went equally as “well” as one could expect given our subject matter. Kendall spent the entire hour in the GI office playing with the cups and water in the sink, so managed to absolutely soak her outfit and… read more »
(are any of you wondering how long i’ll keep up with the “be” titles? Cause i am. wondering that about myself i mean. i give it a week tops. over/under 1.) So anyways – todays post is titled that simply because that is who we were seeing today at CHW. Special needs/complex care. Typically the… read more »
Part 1. That’s what we’ve decided to rename it here at our abode. I don’t even know how to go back and begin trying to start at the beginning of the medical saga that is our lives – so we’ll just kind of jump right in! I think I had posted a while back… read more »
kendallVideo More PowerPoint presentations from terra Ok first a few editorial caveats about the above video. 1.) It was created in powerpoint, which does not translate well to web uploading. That should just about cover most of the issues you will see with it (which means some slides are super fast and others… read more »
