Maybe not success by very many people’s standards – but on a day like today, where I have been awake for far too long and dealt with far too many medical issues – success is measured by being safely home in our own beds. We succesfully got kendall’s ivig infusion for this month. i’ll call …
Come on!!! (If you don’t already have a Kool and the Gang song in your mind then……you need more fun in your life.) So now that we’re all jammin out to some good 80’s tunage, here’s my actual blog for today. As usual, it’s a motley mix of emotions and different things on my mind. …
Today, heaven gained two amazing mito fighters. Today, two little boys, from totally different parts of the country and having fought two totally different mito battles on earth, got to run, got to eat whatever they wanted, got to breathe without tubes, feel the wind on their face, and RUN in ways they never could …
On friday morning, for the first time in over 11 years – I will be alone. All four of my beautiful babies will be “home”, but not at home. They will all be at school. For almost two hours – I will not have snacks to make or tv shows to find or polly pocket …
For those who don’t know – Kendall was re-admitted to her home away from home here on PICU 5 up in Milwaukee on Thursday night. At this point we are still unsure if it is an infection trying to brew that we caught super early, or if it is a delayed and “abnormal” reaction to …
