random ramblings from me
Part 1. That’s what we’ve decided to rename it here at our abode. I don’t even know how to go back and begin trying to start at the beginning of the medical saga that is our lives – so we’ll just kind of jump right in! I think I had posted a while back [Read On]
kendallVideo More PowerPoint presentations from terra Ok first a few editorial caveats about the above video. 1.) It was created in powerpoint, which does not translate well to web uploading. That should just about cover most of the issues you will see with it (which means some slides are super fast and others [Read On]
Three years ago on this night, (except it was a thursday), I walked into the hospital, kind of the same me that I am today, and kind of different. It was a night a lot like tonight – pretty mild for November. I remember that i was wearing cropped pants and flip flops because we [Read On]
This is not goodbye. I just need you to know that. You have the luck/misfortune of being a part of our family now, for better or for worse. To Lorrie and TammyG– you have been here from the beginning. You walked into our house on a cold March morning almost three years ago, there to [Read On]
Or at least, stuff that happened on THIS saturday. I had a craft fair that i attended with my sister for our photography business 2Sisters Photography. It was a lot of fun trying to plan out how we would set up our booth – and we did have a blast! Really, anytime we are together [Read On]
I know I know – I have more than a few days to backdate! including my Mito Week wrapup! It’s been…well i just haven’t had time to blog much! for a plethora of LITTLE reasons that all just suck my time! anyways – tomorrow (Wednesday, probably today for most of you reading this) we have [Read On]
I need a serious flashing blinking warning of some kind on this post. Not only will you need a kleenex or ten, but you will need some smelling salts or some other way of reviving yourself after the shock. Today I have a guest poster. He’s the strong silent type, and I can honestly say [Read On]
Today I was the guest poster over at Dana’s blog – you remember Dana, she blogged here on Tuesday about her son “Looking Great”! Anyways – today I wrote a post for her blog about what it takes for Kendall (and similarly so many other mito kids) to actually HAVE one of those “great days”. [Read On]
Our days are filled with the “give and take” nature of a sometimes invisible disease process. Most days when things are going well, there is nothing to give, and it takes nothing from us. Well, almost nothing. Or maybe its just that we’ve already given so much, we don’t notice what is being taken. But [Read On]
Today I wanted to share the story of a different face of mito, a little boy nicknamed “Klaw”, who deals with a fatty acid oxidation disorder, or part of that metabolic cycle I talked about on Sunday, where the cycle doesn’t complete due to an inefficiency of the body to be able to break down [Read On]
