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Mito Awareness Week

Friday Fabulousness.

Again, just a day late! There seems to be a running theme this week… Anywhooooo. Friday was both fabulous and not-so-fabulous. I started out the morning with a raging migraine, and Kaylen started out the day just raging. Which made for a kind of crazy combo. Our nurse also decided to just rearrange her schedule …

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A Great Day.

Today I was the guest poster over at Dana’s blog – you remember Dana, she blogged here on Tuesday about her son “Looking Great”! Anyways – today I wrote a post for her blog about what it takes for Kendall (and similarly so many other mito kids) to actually HAVE one of those “great days”. …

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