How i am.

This might be one of those really raw, rough posts to read. I’m kind of an emotional mess and I don’t really have a filter right now. So very many of you have asked how i’m doing this past week. Every time the nurse or care partner comes in, they ask “how are you mom,…

success!

Maybe not success by very many people’s standards – but on a day like today, where I have been awake for far too long and dealt with far too many medical issues – success is measured by being safely home in our own beds. We succesfully got kendall’s ivig infusion for this month. i’ll call…

5 Things i’ve learned at the hospital

Goodness knows I could probably write about five HUNDRED things i’ve learned in the hospital over the past few years, but for brevity’s sake, I’ll keep it to just five that are most relevant to this most recent stay. 1.) Checking into the ER at midnight after a 3 hour drive is not a super…

The woods.

We find ourselves firmly ensconced in “the woods” of some kind. Kendall cannot seem to find her way out of the woods, and where she goes, i go. So we are wandering in the woods of septic shock, with DIC rivers, presser thorn bushes, access clearings, and gram negative bears. My mind is still spinning…

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