{Be} Content.

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I started to have one of “those” days today. Where i wished I had different clothes, a different body, a clean house, a maid to clean the house, that I got to go gallivanting off for a pedicure/vacation/shopping spree on a whim. All it took was a few facebook posts to get me both INTO… read more »

A Very Bad Trade.

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You know that scene in the movie “dances with wolves” where Wind In His Hair negotiates a trade for Dances with Wolves and another tribe member and he says “Good. Trade.” – Ok maybe you don’t. But basically, this morning, I get the BAD end of a “trade” with Ben. One that I made while… read more »

{Be} Affirmed.

Today’s appointments were MUCH quieter (because my awesome mom kept the other 3 banshees) than yesterdays, but went equally as “well” as one could expect given our subject matter. Kendall spent the entire hour in the GI office playing with the cups and water in the sink, so managed to absolutely soak her outfit and… read more »

{Be} Complex.

(are any of you wondering how long i’ll keep up with the “be” titles? Cause i am. wondering that about myself i mean. i give it a week tops. over/under 1.) So anyways – todays post is titled that simply because that is who we were seeing today at CHW. Special needs/complex care. Typically the… read more »

{Be} Calm.

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I’m trying to remain calm on this second day of 2012.  I’m not really THAT stressed (or whatever the opposite of calm is) – but we have a lot going on in the next couple of days. For starters my heart crap is kicking back into gear again. I had a reprieve of almost 4… read more »

Atkinson General Hospital.

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  Part 1. That’s what we’ve decided to rename it here at our abode. I don’t even know how to go back and begin trying to start at the beginning of the medical saga that is our lives – so we’ll just kind of jump right in! I think I had posted a while back… read more »

on the road again.

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I know I know – I have more than a few days to backdate! including my Mito Week wrapup! It’s been…well i just haven’t had time to blog much! for a plethora of LITTLE reasons that all just suck my time! anyways – tomorrow (Wednesday, probably today for most of you reading this) we have… read more »

Long time, no talk.

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I am not even sure i remember how to publish a blog it’s been so long… It has been a rather “challenging” couple weeks since Kendall’s surgery. Nothing that was horrifically bad, well, if you don’t count the whole watching Kendall disintegrate with pain for two straight weeks thing. But other than that, it’s just… read more »

More tubes, more tests, less answers.

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The long awaited GI appointment update at last. I actually had MOST of this typed up a few days ago, and then my blog editor ate it. Talk about frustration. Although sometimes that is maybe a good thing, cause it might help me ramble less…. on second thought, no, probably nothing can help that. Anyways.… read more »

on the 30th day of December.

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We checked in to CHW Milwaukee just after midnite. That confuses me on how to say it. this morning? last nite? whichever. I signed discharge papers on the 29th and signed admit papers on the 30th, and in between we had one heckuva fast ride from Park Ridge to Milwaukee. Kendall GREATLY enjoyed sitting up… read more »

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