All around, actually, it’s been a pretty good week. Little hectic, but, you know, I think that’s kind of par for the course here in our little world. right now I am sitting at the kitchen table, enjoying the nice even light coming through our back door, listening to the sounds of NOTHING, and just trying to breathe in and breathe out for a while.
Occupational therapy was fun yesterday. It was our first visit to the studio, since our other therapists all come to our house (Praise God for EI services from the state!!!). We finally got in with this place, where Kendall will be working on some of her fine motor skills (like learning to pick up small things, play with toys on her own, build upper body strength, etc.) Except that instead of therapy being about Kendall, it turned into crazy carnival day for Kaylen. If you’ve ever had opportunity to work with kids with autism or know a little about some of the therapies they use for them, this was a HUGE sensory experience room – swings hanging from the ceiling, large therapy balls all over, gymnastic mats of various shapes and sizes all across the floor, and a little trampoline with handles. Kaylen about went apopleptic when she saw it all. Oh and all the toys. If you’ve seen Kaylen in action, you know she just DOES. NOT. STOP. Ever. For Anything. She lives at a speed of about 10 on a scale of 10. She kicked it into high gear in that room – i swear she was like a cartoon version of herself, all over that room. She kept yelling out – mommy i swing! mommy i jump! mommy hook at da toys!
somehow the therapist and I were able to actually do stuff with Kendall, who was in a GREAT mood and oh so willing to perform like a superstar! The therapist was shocked. The only report she had was the intake eval we did back in April, when Kendall was recovering from her second bout of pneumonia and did little more than lay there like a lump of goo. It was so nice to hear someone be SO excited about her progress, happy with the amazing little things she CAN do. (Vs. the residents or other docs who ask if she’s crawling or sitting independently or walking. Um no. We’re kind of more excited that she’s realized she HAS hands, we’re still working on getting her to use them together! Check back in a few months for the rest of that stuff!)
But anyways – it was good stuff. Of course right after we get done with that, kendall is back to rag dolling it, and starts in with her junky coughing fits and has the energy of a slug. We had a few errands to run, and by the time we got home she was absolutely wasted! Two albuterol nebs later, she still sounded like a freight train when she breathed, but she wasn’t laboring to breathe. Her temperature actually went DOWN in response to all this to 96! This kid is just so WERID! She slept all nite though, and even though I FROZE, she seemed to get some relief from the coughing finally when i had the windows cracked open. She’s still real low-key today. It’s been about 11 days of her having this crappy cough with no other real symptoms to speak of so I am not sure what’s going on with it. It doesn’t seem to be getting worse, but it’s certainly not getting better anytime quick! I hope she is able to keep fighting whatever it is because i am pretty sure they’ll think i am officially crazy if i have to take her back up to LG anytime soon! Keep your fingers crossed and prayers going!
And so today I am just – being.
Being caffeinated with a nice caramel macchiato. (thanks laura for the new addiction!)
Being excited about the fall season, and all the fun things it brings.
Now to just kick it into high gear for myself and dig out the fall decorations and research pumpkin patch farms!
And since these two don’t get much airtime – some pics. They’re growing up so fast. Glad i got to capture a few moments in time – playing dressup in the creek with their sister from another mother. Hope they always hold on to this innocent time.