They are good to have, but sometimes hard to make. Today at Kendall’s one year well child check up with Dr. Natalie, that was how it was. I love her. She continues to be one of the best people we could ever have hoped to have on Kendall’s team of doctors/care specialists. She looked at …
For the many many families affected by Mitochondrial Disease, HOPE is all they have to hold on to. A dear friend of mine named Allison who I met on this path to a diagnosis for Kendall has a daughter affected by a strain of mito that was originally thought to be MELAS (which meant she …
How do you define relief? How do you define one of the biggest answers to prayers you could possibly have received? I don’t know, so i am not even going to attempt to capture it. We got a phone call from genetics today to go over results. My heart was pounding as I picked up …
I am honestly having a hard time believing it is December! I am, of course, trying to be better about December (blogging every day) than I was in November – kinda phhhhppped out there at the end! I may still go back and put random stuff on the empty days – kinda like an advent …
have a lot to say. really. i just haven’t had the time/energy to sit and type it all out. It’s not even like it’s all emotional baggage stuff. In fact it’s mostly NOT emotional stuff, but still, it just hasn’t happened this past week! I think having Ben home for two straight weeks plus the …
