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Thank You.

To all of you who have taken or ARE taking the time to write/comment/leave me love – thank you. It was not an attempt to fish for all the kind things you are saying – but I can’t tell you how much it means to me to hear you saying them! Your words are helping …

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on the road again.

I know I know – I have more than a few days to backdate! including my Mito Week wrapup! It’s been…well i just haven’t had time to blog much! for a plethora of LITTLE reasons that all just suck my time! anyways – tomorrow (Wednesday, probably today for most of you reading this) we have …

on the road again. Read More »

A Great Day.

Today I was the guest poster over at Dana’s blog – you remember Dana, she blogged here on Tuesday about her son “Looking Great”! Anyways – today I wrote a post for her blog about what it takes for Kendall (and similarly so many other mito kids) to actually HAVE one of those “great days”. …

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