Warning – lots of frustration venting straight ahead – you are hereby warned! I do not understand the logic behind starving a 3 month old child who already has failure to thrive and is recovering from essentially a life-threatening illness. Kendall was scheduled to have her MRI at 8 am, meaning we took her off …
Biggest news of Sunday – We’re OFF OXYGEN!!! She is now breathing completely on her own and moving air and oxygen through her lungs and blood with her own abilities. Her heartrate is much more normal, she is sleeping, and the best part? She smiled at us again today. THAT’s how I know we’re almost …
It is dark in our little room. There is the glow of the monitor and its aqua colored numbers and “wave patterns”. A little teeny red glow on the bed which is her O2 monitor stuck to her big toe. Outside of her room i can hear all the nurses being busy getting ready to …
Today was a very busy day for my little girl! It started out at 6 am when her heartrate skyrocketed for no reason (they expect it to be high after one of her nebulizer treatments or when she is spiking a fever), so that started somewhat of a flurry of activity. They ordered a chest …
I feel like I will be just jumping right into the middle of her story here with this post, but this is for the purpose of both trying to process all that has happened in the past 24 hours, remembering what the doctor told us in our marathon session a few hours ago, and updating …
