Today, heaven gained two amazing mito fighters. Today, two little boys, from totally different parts of the country and having fought two totally different mito battles on earth, got to run, got to eat whatever they wanted, got to breathe without tubes, feel the wind on their face, and RUN in ways they never could …
Ohhhh monday….so cruel with your 6 am wakeup calls and freezing cold weather. I’m not ready for fall, not ready for these dark morning and dark evenings, not ready for the cold! But i AM ready for this week, I think. Last week was a not so fun week. Just too many frustrations and too …
For those who don’t know – Kendall was re-admitted to her home away from home here on PICU 5 up in Milwaukee on Thursday night. At this point we are still unsure if it is an infection trying to brew that we caught super early, or if it is a delayed and “abnormal” reaction to …
Another turning point, a fork stuck in the road. Time grabs you by the wrist – directs you where to go So make the best of this test and don’t ask “why” It’s not a question but a lesson learned in time It’s something unpredictable that in the end is right i hope you had …
I feel like that’s all I do some days. Wait for energy to descend upon me like a magical glove from heaven. Wait for the fax machine to ring announcing Kendall’s labs are done. Waiting for a doctor to call back with a plan. Waiting for Kendall to feel better. Waiting for a break to …
