All day today I have been looking at the clock and thinking “one week ago at exactly this time we were getting called that they had finished the muscle biopsy”, “one week ago at this time we raided the vending machines”, “one week ago at this time they were wheeling her into her PICU room …
We made it to the other side of surgery. we survived a nite of hellish pain (on kendall’s part) that i wouldn’t wish on my worst enemy. At one point she had four doses of morphine stacked on top of each other and it wasn’t even close to touching the pain. her throat was ripped …
Three procedures are complete – muscle biopsy, G-tube placement, and fundoplication. they are finishing up her intestinal biopsies and she will be brought up. I am so relieved that she has made it through this far. apparently her IV DID kink RIGHT as they were doing the first med to knock her out. So – …
I knew this would happen though. My actual guess for her surgery time was 12:15, and now its looking like she is scheduled for 1:15. So i wasn’t too far off. And it allowed Ben and I to be able to run and fill up on Dunkin Donuts and McDonalds so it was a good …
I have a love/hate, push/pull, attract/repel relationship with NORMAL. My whole life I have tried my very hardest to not be NORMAL, average, plain jane, blend in with the crowd, follow the sheeple. Not that I am not, by many people’s standards, some semblance of normal, but in my own mind, I’m doing things my …
