Is becoming a rampant problem. It is also annoying in adults when the crazy sheets of ice you now have to drive on that used to be roads are reflecting the three hours of sunlight you get in the freezing cold. That sentence made no sense. Anyways. It’s cold and bright and shiny and hard …
And we’re back! Thanks to the wonderful, kind, dare I say heroic efforts of an awesome family from our church – our heat has been restored! Thanks so much Mike! And to the many others of you who offered your homes, food, and other protection from the chilly night last nite (and this morning) – …
(too cold, too cold) I mean honestly…it is SO COLD in here! I wanted to do a nice long update about our testing results from our milwaukee trip, our pediatrician appointment today, and just life in general as we get ready for christmas – but our heater is broken and it’s so cold that I …
For the many many families affected by Mitochondrial Disease, HOPE is all they have to hold on to. A dear friend of mine named Allison who I met on this path to a diagnosis for Kendall has a daughter affected by a strain of mito that was originally thought to be MELAS (which meant she …
How do you define relief? How do you define one of the biggest answers to prayers you could possibly have received? I don’t know, so i am not even going to attempt to capture it. We got a phone call from genetics today to go over results. My heart was pounding as I picked up …
