We are still here, just cruisin along, doing what we do. Getting through each day, trying to soak up and enjoy the most out of each day. for the most part – this means we get up, do the school craziness, i do what I can on the kendall craziness, we play playdoh, sissies come …
my thoughts are random and jumbly right now, so please forgive me if this post is hard to follow. I am ecstatic that we are all working today on plans to finally be leaving this place. But what will it mean when we leave? I had a very very very hard conversation with Kendall’s doctor …
Another turning point, a fork stuck in the road. Time grabs you by the wrist – directs you where to go So make the best of this test and don’t ask “why” It’s not a question but a lesson learned in time It’s something unpredictable that in the end is right i hope you had …
This morning, for the first time in her life, I got to witness my child take her first breath. When she was born, she was whisked away from me because she was not breathing. She was intubated and extubated in the NICU without me there. I’ve never been present any other time she needed to …
Last night on Kendall’s page, I updated that she was very upset at me for singing “Part of Your World” very loudly to her. Her nurses both joined in too, but it was mostly me she was mad at. It gave us all one of those weird “fun” moments you have to carve out in …
