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Kendall

2009 Medical Review

If you are an astute observer (or perhaps you are a subscriber and caught this post at the end of your email delivery!) you will realize that I am posting this about 2 months late. But like I always say – it’s my record keeping place! Without further ado – our medical review of 2009(and …

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ugh.

just ugh. its too much to probably catch up on in one post – but  basically little miss thang is pulling out all the stops in an effort to drive me insane. i mean, i am sure that’s not her end goal, but it is a nice side effect. In as much of a nutshell …

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a kendall update

because I have been a horrible blogger in December in spite of my best intentions and plans.   WE MADE IT!!!   I didn’t want to celebrate too loudly because I was afraid of jinxing it – but we made it to the big day of Dec 18, which marked the LONGEST stretch of time …

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plans

They are good to have, but sometimes hard to make. Today at Kendall’s one year well child check up with Dr. Natalie, that was how it was. I love her. She continues to be one of the best people we could ever have hoped to have on Kendall’s team of doctors/care specialists. She looked at …

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a gift of hope

For the many many families affected by Mitochondrial Disease, HOPE is all they have to hold on to. A dear friend of mine  named Allison who I met on this path to a diagnosis for Kendall has a daughter affected by a strain of mito that was originally thought to be MELAS (which meant she …

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