And we’re back! Thanks to the wonderful, kind, dare I say heroic efforts of an awesome family from our church – our heat has been restored! Thanks so much Mike! And to the many others of you who offered your homes, food, and other protection from the chilly night last nite (and this morning) – …
(too cold, too cold) I mean honestly…it is SO COLD in here! I wanted to do a nice long update about our testing results from our milwaukee trip, our pediatrician appointment today, and just life in general as we get ready for christmas – but our heater is broken and it’s so cold that I …
They are good to have, but sometimes hard to make. Today at Kendall’s one year well child check up with Dr. Natalie, that was how it was. I love her. She continues to be one of the best people we could ever have hoped to have on Kendall’s team of doctors/care specialists. She looked at …
For the many many families affected by Mitochondrial Disease, HOPE is all they have to hold on to. A dear friend of mine named Allison who I met on this path to a diagnosis for Kendall has a daughter affected by a strain of mito that was originally thought to be MELAS (which meant she …
How do you define relief? How do you define one of the biggest answers to prayers you could possibly have received? I don’t know, so i am not even going to attempt to capture it. We got a phone call from genetics today to go over results. My heart was pounding as I picked up …
