I can’t believe how long it’s been since I posted! It’s been a mixture of tiredness at the end of the day, not having much new stuff to report, and feeling like my life is just one big blur of kendall issues, and really how exciting is that to blog about? So – this may …
michael jackson died. kendall pulled her tube out with the balloon intact and we had to actually go to an ER to get it put back in. kaylen fell off her little push-car, hurt her head, gave us a little scare, and the proceeded to drop a deuce on the carpet in the basement. and …
All day today I have been looking at the clock and thinking “one week ago at exactly this time we were getting called that they had finished the muscle biopsy”, “one week ago at this time we raided the vending machines”, “one week ago at this time they were wheeling her into her PICU room …
We made it to the other side of surgery. we survived a nite of hellish pain (on kendall’s part) that i wouldn’t wish on my worst enemy. At one point she had four doses of morphine stacked on top of each other and it wasn’t even close to touching the pain. her throat was ripped …
Three procedures are complete – muscle biopsy, G-tube placement, and fundoplication. they are finishing up her intestinal biopsies and she will be brought up. I am so relieved that she has made it through this far. apparently her IV DID kink RIGHT as they were doing the first med to knock her out. So – …
