I know I know – I have more than a few days to backdate! including my Mito Week wrapup! It’s been…well i just haven’t had time to blog much! for a plethora of LITTLE reasons that all just suck my time! anyways – tomorrow (Wednesday, probably today for most of you reading this) we have …
I need a serious flashing blinking warning of some kind on this post. Not only will you need a kleenex or ten, but you will need some smelling salts or some other way of reviving yourself after the shock. Today I have a guest poster. He’s the strong silent type, and I can honestly say …
Today I was the guest poster over at Dana’s blog – you remember Dana, she blogged here on Tuesday about her son “Looking Great”! Anyways – today I wrote a post for her blog about what it takes for Kendall (and similarly so many other mito kids) to actually HAVE one of those “great days”. …
Our days are filled with the “give and take” nature of a sometimes invisible disease process. Most days when things are going well, there is nothing to give, and it takes nothing from us. Well, almost nothing. Or maybe its just that we’ve already given so much, we don’t notice what is being taken. But …
Today I wanted to share the story of a different face of mito, a little boy nicknamed “Klaw”, who deals with a fatty acid oxidation disorder, or part of that metabolic cycle I talked about on Sunday, where the cycle doesn’t complete due to an inefficiency of the body to be able to break down …
