I think this has honestly been one of the longest weeks of my life. I have probably been awake for most of it, which is part of what prolongs the days. i am glad we made it to this point. Tonite I am home with my other three babies. It is good to hug them …
Sorry if that is not quite a direct translation of Jesus’ admonition to us – to not worry about tomorrow because today has enough troubles of its own. I definitely feel like i am there. I have quite a large capacity for medical info/knowledge being thrown at me, and being able to convert it into …
After waiting all day – we finally made it to the MRI at 3:30. She has endured 12 hours, almost 13 by the time she gets her tube hooked back up, of not eating, 4 breathing treatments, 2 physical exams by residents (learning doctors), a 1/2 hour of physical therapy, exam by her main doctor, …
Warning – lots of frustration venting straight ahead – you are hereby warned! I do not understand the logic behind starving a 3 month old child who already has failure to thrive and is recovering from essentially a life-threatening illness. Kendall was scheduled to have her MRI at 8 am, meaning we took her off …
Biggest news of Sunday – We’re OFF OXYGEN!!! She is now breathing completely on her own and moving air and oxygen through her lungs and blood with her own abilities. Her heartrate is much more normal, she is sleeping, and the best part? She smiled at us again today. THAT’s how I know we’re almost …
