Her body just isn’t sure what to do with the growth hormone! That was the jist of today’s appointment in milwaukee with the endocrinologist. Genetics referred us to endo because they were afraid we were looking at a disease which would limit her growth hormone, and hence the failure to thrive we’re still dealing with. …
STILL? I have no idea why – but this has seemed like the longest day. Probably because I am still trying to employ deep breathing techniques that the remote control has been lost. i didn’t think we watched THAT much TV, until it was stuck on disney channel for about two straight hours and i …
whatever it is that gets you through long reads – cause contrary to my mother’s advice (don’t worry, the shock of this will wear off for her soon enough) – this one’s gonna be long. at least i think it is. it’s been a few days removed from the chaos of last weekend. I don’t …
It is so very good to be home. This was a tough weekend. I think, to be honest, it will take me a while to fully be able to process how i think and feel about all that happened. Or didn’t happen. I didn’t expect anything more than that she would just be kept alive, …
It has been a day. i am not even sure where to begin with the update so i’ll just give a quick status update and then do my written processing after that… Kendall’s tube is still not back in. The ER doc tried for over an hour to force incrementally larger tubes through the quickly …
