When we are in the hospital, life is turned upside down. If you’ve ever been there, you know what I’m talking about. If you have not, you think you can imagine the craziness, but I would just about guarantee it’s even crazier than you can imagine. But many of you do know, and the rest …
In honor of Mitochondrial Disease Awareness Week, I thought I’d start off with a post about what exactly IS mitochondrial disease (“mito”)? And truthfully – it’s a question that some of the best and brightest minds in the medical world have a hard time answering. At the base of the science behind mito is this …
Ok could it be any colder? Wait. Don’t answer that. I don’t really want the weather to prove to us that it CAN indeed be colder. And for the record, this is the SECOND time I am typing this exact same post because WLW crashed the first time and lost the whole thing – RIGHT …
For the many many families affected by Mitochondrial Disease, HOPE is all they have to hold on to. A dear friend of mine named Allison who I met on this path to a diagnosis for Kendall has a daughter affected by a strain of mito that was originally thought to be MELAS (which meant she …
