Three Years of Kendall.

kendallVideo More PowerPoint presentations from terra     Ok first a few editorial caveats about the above video. 1.) It was created in powerpoint, which does not translate well to web uploading. That should just about cover most of the issues you will see with it (which means some slides are super fast and others…

A Great Day.

Today I was the guest poster over at Dana’s blog – you remember Dana, she blogged here on Tuesday about her son “Looking Great”! Anyways – today I wrote a post for her blog about what it takes for Kendall (and similarly so many other mito kids) to actually HAVE one of those “great days”.…

Give and Take.

Our days are filled with the “give and take” nature of  a sometimes invisible disease process. Most days when things are going well, there is nothing to give, and it takes nothing from us. Well, almost nothing. Or maybe its just that we’ve already given so much, we don’t notice what is being taken. But…

“He Looks Great!”

Today I wanted to share the story of a different face of mito, a little boy nicknamed “Klaw”, who deals with a fatty acid oxidation disorder, or part of that metabolic cycle I talked about on Sunday, where the cycle doesn’t complete due to an inefficiency of the body to be able to break down…

Related Posts Plugin for WordPress, Blogger...