the little things.

Usually I am ok with where Kendall is at. I think sometimes I waffle between thinking of her as a “special needs child”, and thinking of her as just my baby who happens to be a little more medically involved than my others. (It’s a subtle difference, but in my heart, it’s huge). I have…

A good day

All around, actually, it’s been a pretty good week. Little hectic, but, you know, I think that’s kind of par for the course here in our little world. right now I am sitting at the kitchen table, enjoying the nice even light coming through our back door, listening to the sounds of NOTHING, and just…

so she can grow…

Her body just isn’t sure what to do with the growth hormone! That was the jist of today’s appointment in milwaukee with the endocrinologist. Genetics referred us to endo because they were afraid we were looking at a disease which would limit her growth hormone, and hence the failure to thrive we’re still dealing with.…

When Bad goes to worse

It has been a day. i am not even sure where to begin with the update so i’ll just give a quick status update and then do my written processing after that… Kendall’s tube is still not back in. The ER doc tried for over an hour to force incrementally larger tubes through the quickly…

I so *pink puffy heart* the ER…

That i apparently can’t keep myself or my kids away from it. Just a quick update – we are headed up to the ER at Lutheran to get a few things checked out for Kendall Quinn. first – her tube came out at some point last nite. Yesterday afternoon I noticed a lot of reddish…

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