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feeding intolerance

The condiment queen.

If you’ve ever met Kendall in real life, chances are, you’ve seen her live up to her nickname “the Condiment Queen”. And what that means is that rather than actually eating real food, Kendall is mildly obsessed with eating the “condiments” – butter, jelly, syrup, whipped cream (yes she’s basically on the Elf diet).And what …

The condiment queen. Read More »

Hope In a Can.

So much hope in one little can. And a big bag of pure sugar. With this crazy mixture, we hope we can rehabilitate Kendall’s gut. We hope her body will accept this blend of nutrition, absorb it, move it, grow on it, thrive on it. Hope. It’s the special ingredient not listed on that can. …

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{Be} Confused!

Well, as i had hoped, Kendall’s emergency warning symptoms of Sunday morning seem to once again just be the effects of a very wonky autonomic system! She spent most of yesterday laying on the couch quietly watching her Hot Dog, Eggo (Diego), and Berry Cort-cakes – temp still very slightly elevated, but no more bleeding. …

{Be} Confused! Read More »

Perking up!

I will try (TRYYYYY ok, it’s hard when you’re as verbose as myself!) to keep this one shorter. Since the hospital network has decided I can’t get on Facebook anymore, I will try to update here when anything exciting is happening! So after spiking a crazy fever last nite right around bedtime, things have been …

Perking up! Read More »