“When all you gotta keep is strong, move along like I know you do” – Tyson Ritter
It’s from a song. A song I love to blare out the radio speakers and sing along to at the top of my lungs. And that’s how today feels. Like we’re movin’ along. I cannot tell you the encouragement I have received over the weekend from those of you who just let me know you’re reading and praying, from the cards and gifts (thanks Aunt Margie and Grandma Marge!), from just amazing little (and big) ways that God continues to reassure us that HE is in control, HE is guiding our paths, and Kendall is so very loved by Him and His ultimate plan.
She appears to be feeling better today. No puking in almost two days. I hesitate to write that even because that almost always triggers another pukefest – it’s like she knows I wrote it down! We have had to take her feeding rates WAY down to accomplish this, so I worry if this will affect her weight gain at all, but overall I feel like we are doing the right thing FOR HER right now.
Tomorrow we go to her new pediatrician for the first visit. I had scheduled the visit over a week ago, and the nurse called me today to say that Dr. Natalie wanted to be sure she had extra time with us so could we come in at a different time. I thought that was nice, and am excited that Dr. Natalie will actually want to get the FULL picture of what is going on with Kendall and help us manage and track her progress through all of the specialists/therapists/etc. Maybe she’ll even help us get some formula samples! Still no word from insurance on that issue – they have told our home health care company (who supplies all our feeding tube/medical supplies) that they will give us a determination in 4-6 weeks. I heard that and was all “Um no. How about 4-6 minutes? It’s a simple question with a simple answer. Is it medically necessary? Yes. Got it? good.” But the bimbo blonde I got on the phone at the insurance co. on Friday afternoon was just SO not helpful, so I’ll have to call and hope I get someone with at least the IQ of a rock today. Hope.
But overall – my spirits have definitely been lifted and revived this weekend. Awesome awesome time of worship at church yesterday. Praising God for His blessings in spite of the chaos. Thanking God for friends who know just what I need to hear, just when I need to hear it. Feeling hopeful that spring WILL be here soon, and that this awesome weather isn’t just a tease!
More details on the formula thing later.
Thank you for praying.