Today I was the guest poster over at Dana’s blog – you remember Dana, she blogged here on Tuesday about her son “Looking Great”! Anyways – today I wrote a post for her blog about what it takes for Kendall (and similarly so many other mito kids) to actually HAVE one of those “great days”. …
Our days are filled with the “give and take” nature of a sometimes invisible disease process. Most days when things are going well, there is nothing to give, and it takes nothing from us. Well, almost nothing. Or maybe its just that we’ve already given so much, we don’t notice what is being taken. But …
Today I wanted to share the story of a different face of mito, a little boy nicknamed “Klaw”, who deals with a fatty acid oxidation disorder, or part of that metabolic cycle I talked about on Sunday, where the cycle doesn’t complete due to an inefficiency of the body to be able to break down …
This post might be a hard one to get out. Not because of the emotion of it, although that plays a part. But more because it brings up so many questions than answers. That’s always been kind of the nature of it with Kendall, though. More questions than answers. We are often asked when we …
In honor of Mitochondrial Disease Awareness Week, I thought I’d start off with a post about what exactly IS mitochondrial disease (“mito”)? And truthfully – it’s a question that some of the best and brightest minds in the medical world have a hard time answering. At the base of the science behind mito is this …
