They are good to have, but sometimes hard to make. Today at Kendall’s one year well child check up with Dr. Natalie, that was how it was. I love her. She continues to be one of the best people we could ever have hoped to have on Kendall’s team of doctors/care specialists. She looked at …
For the many many families affected by Mitochondrial Disease, HOPE is all they have to hold on to. A dear friend of mine named Allison who I met on this path to a diagnosis for Kendall has a daughter affected by a strain of mito that was originally thought to be MELAS (which meant she …
How do you define relief? How do you define one of the biggest answers to prayers you could possibly have received? I don’t know, so i am not even going to attempt to capture it. We got a phone call from genetics today to go over results. My heart was pounding as I picked up …
I am honestly having a hard time believing it is December! I am, of course, trying to be better about December (blogging every day) than I was in November – kinda phhhhppped out there at the end! I may still go back and put random stuff on the empty days – kinda like an advent …
