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Month: June 2009

what a week.

michael jackson died. kendall pulled her tube out with the balloon intact and we had to actually go to an ER to get it put back in. kaylen fell off her little push-car, hurt her head, gave us a little scare, and the proceeded to drop a deuce on the carpet in the basement. and …

what a week. Read More »

One Week Later.

All day today I have been looking at the clock and thinking “one week ago at exactly this time we were getting called that they had finished the muscle biopsy”, “one week ago at this time we raided the vending machines”, “one week ago at this time they were wheeling her into her PICU room …

One Week Later. Read More »

the other side.

We made it to the other side of surgery. we survived a nite of hellish pain (on kendall’s part) that i wouldn’t wish on my worst enemy. At one point she had four doses of morphine stacked on top of each other and it wasn’t even close to touching the pain. her throat was ripped …

the other side. Read More »

Three Down, one to go

Three procedures are complete – muscle biopsy, G-tube placement, and fundoplication. they are finishing up her intestinal biopsies and she will be brought up. I am so relieved that she has made it through this far. apparently her IV DID kink RIGHT as they were doing the first med to knock her out. So – …

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Bumped.

 I knew this would happen though. My actual guess for her surgery time was 12:15, and now its looking like she is scheduled for 1:15. So i wasn’t too far off. And it allowed Ben and I to be able to run and fill up on Dunkin Donuts and McDonalds so it was a good …

Bumped. Read More »